Unhappy Visitor

 

I received this from an "unhappy" visitor to my sideshow website...Joe

Just wanted to let you know there are a LOT of people in this world who don't appreciate the stereotyping and side-show image of their disabilities as portrayed by the circus industry. Please remember, there are people attached to these conditions. They are not "human oddities." They are living, working, people who have to deal with discrimination and gawking. If you are going to include a description of the specific conditions causing the "side-show affliction" why not do something to help dispel the myths about these people by adding links to valid information about the condition.

Here are some examples you could add.

You may want to add links to help people understand  conditions like,  Ehlers Danlos Syndrome, Marfan Syndrome and there a many others.

"ANATOMICAL WONDER" - This is often caused by Hypermobile Type Ehlers Danlos Syndrome or Marfan Syndrome.

"ELEPHANT SKIN GIRL/BOY/ETC." - Caused by Classical Type Ehlers Danlos.

"FROG MAN/GIRL/ETC." - Caused by Hypermobile Type Ehlers Danlos Syndrome. Classical Type Ehlers Danlos Syndrome causes skin laxity. These are two distinct disorders.

"RUBBER-SKINNED MAN/WOMAN" - This may also be caused by Classical Type Ehlers Danlos Syndrome.

"TURTLE WOMAN/MAN" - "Double-Jointed" is a misnomer. There is no such thing as a double-joint. This is caused by joint hypermobility.

B.....President Area Branch Ehlers Danlos National Foundation

by Joe Bates 11-05-1998

 

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